Previous Meeting

Meeting held on Friday 16th August 2019 – 4.00pm, to 6.00pm. held in the Horizon View Room at The Macmillan Horizon Centre, RSCH,Brighton. 

1)Chairperson (Sandra):  

Sandra was absent from today’s meeting so it was opened by Jacki who welcomed everybody to the meeting.                                                                  

2) Secretary  (Steve): 

Apologies: Steve had received an apologies from Sandra & Jim,Marj,John,plus Jo Kerr,Richard Simcock and Sandeepa Soni.

Outstanding points from last meeting: 

                                                              

AP23/18 – Macmillan Support Group Grants.  We still have £52 from the laptop grant which Steve is going to use to order ink for the printer. – ONGOING.

 25/18  — NHS training for Macmillan volunteers on NHS  premises(Buddies)– Not really getting anywhere with this,agreed that I will try again and if no reply then will dismiss this. – ONGOING.

01/19  — Melissa Williams at the Keep has offered to arrange a visit — Sandra to arrange.– ONGOING.

02/19  — Drop-Ins — volunteers needed for future meeting dates. – ONGOING.

03/19  — Mid Sussex Support group at PRH Hospital – Mark Whitcomb from Macmillan is now involved in setting this up,we are waiting for him to return from an operation.– ONGOING.

04/19 – 2019 Head & Neck Conference — – ONGOING.

  • Tickets to be obtained,  – -Steve has got 20 tickets for day2.Steve to print off the tickets for the October meeting.
  • Volunteers for day 1 to be offered to the organisers,  — Steve has contacted the organisers (Swallows), who will let us know when they will arrange the volunteer list,they thanked us for offering– Not heard anything so will send a reminder email and copy in Richard Simcock.
  • Tee shirts to be obtained with Thancs logo. –Steve is going to investigate this with Vistaprint.— Will cost @£7-99 a shirt,agreed by the attendees today,will inform Chairman (Sandra).

 A/P 07/19 – The team had a visit from the Head & Neck director from the BSUH trust to congratulate them on their award from Macmillan. Steve has found out that this was Jane McNevin so will invite them to a future meeting. – ONGOING.

A/P 08/19Summer Social event:  This took place on Friday 5th July at the Coach House,Rottingdean — feedback was that a very good time was had the food was excellent — Steve to send a email to the landlady with the feedback. — COMPLETED.  

09/19  — Mailing list: Steve to ensure that the clinical staff linked to the group are on our email list,and then email them dates of our meetings.– COMPLETED.  

10/19  — Drop – Ins on 1st Wednesday of intermediate months: Steve does not work Wednesday anymore so it was agreed that he would email Geoff Brown the Horizon Center manager to cancel the dates of the drop-ins.– COMPLETED.  

11/19  — Meetings Agenda and make up: This was discussed today and it was agreed that it would be a good idea to have a Specific subject that would be discussed during the meeting,it was also agreed that to split the meeting at half-way for tea/coffee and comfort breaks was a good idea.Steve will work on these ideas with further discussion at the next meeting before implementing probably 1st meeting in 2020.– ONGOING.

3) Treasurer (Jacki): 

  1. a) Funds: Our funds currently stand at £1388.We have paid out £360 for the tablet for the Chemo department at the Cancer Center.It was agreed to invite Jane Pickett and a chemo nurse to the October meeting so that it can be presented. Jacki is also going to look at other prices for the scales as the price quoted from the SCF was considered to be too high.                                                                                                      
  2. b) Fundraising: We continue to look into further ideas for fundraising.                                                                                                 
  3. c) Cheques: A reminder that any cheques need to be made out to Sussex Cancer Fund but write for Thancs on the back of the cheque.                                                             
  4. d) Fair Stalls:  We continue to look at other similar events in Brighton, Hove, Peacehaven and Seaford areas to possibly run a stall in 2020..                                                                                

4) Buddies update (John /Jim / Sandra):– NO REPORT today as all absent,however we would assume no change from below.

Radiotherapy – Continues to be very busy,numbers are still rising and it was noticeable there are a lot of younger people being affected by head & neck.                                                                      

Chemotherapy — Also continues to be very busy, numbers rising as well and with standing room only in reception at times.                                                                                                     

Volunteers  – We still need more buddies.                                                                                                              

5) Clinical update (Hetal & Susan): 

No report from the clinicians as nobody attended this time. 

 Dentists: All dentists now have to do a full oral check for signs of cancer during regular. 

6) AOB:                                                                                                                          

  1. a) Events – An update on events diary.

6th & 7th  November 2019– Head & Neck Cancer conference being held in Brighton.– See A/P 04/19 above. 

  1. b) Leaflet — Sandra,Jacki and Steve had agreed that the leaflet needs to be updated because of changing personnel and also agreed to amend the layout to include a tear off strip to enable new patients to contact us directly as we have not been getting new patients through other ways.These changes were discussed today and Jacki and Steve will look to make the changes.
  2. c) Communications — Sandra is having a meeting with Robyn Payne to look into improving communication links with us,new patients and clinical staff.
  3. c) New Action points:.

12/19  — Meeting Invite: Steve to invite Robin Payne (Macmillan Nurse) to the October meeting.

13/19  — Purchased item for Chemo department: Steve to invite Jane Pickett and a nurse from the chemo department to the next meeting to present the tablet.

14/19  — Leaflet Update: It was agreed that Jacki and Steve would look into amending the leaflet given to new patients as discussed above.

7) Next meeting:   The next meeting is planned for Friday 18th October 4.00pm, to 6.00pm. at The Horizon Centre. 

Attendees were thanked ……. Meeting Closed at 5.45pm.

COMMITTEE MEMBERS:

CHAIRPERSON – Sandra Aughney.                                                        

SECRETARY & WEBSITE – Steve Grantham.

TREASURER – Jacki Clarke.                                                                         

CLINICAL INPUT – Heeta Raval (Radiographer) and Susan Vyoral(Dietician) and Ella Bowen and Robin Payne (Macmillan Cancer Support Workers),Richard Simcock (Consultant) and AJ Ray-Chaudhuri (Restorative Dentist).                                

COMMITTEE – -Group Members (Patients & Carers).                                                                

Steve Grantham.

 PREVIOUS MEETINGS:

 

For copies of last meetings please contact Steve Grantham who will supply a copy of it for you.

14th June 2019.           26th April 2019.             15th February 2019.

19th October 2018         16th August 2018.          15th June 2018.               20th April 2018.             16th February 2018.

1st December 2017.       15th September 2017.    30th June 2017.           10th March 2017.

9th December 2016.      21st September 2016.  8th July 2016.    11th March 2016.

8th December 2015.     29th September 2015.  6th June 2015.   17th March 2015.

12th December 2014.   22nd September 2014.   11th June 2014. 14th March 2014.

19th December 2013.   27th September 2013.

There were meetings prior to these dates when no minutes were kept.

11th June 2013.               22nd March 2013.

13th December 2012.   19th September 2012.   9th July 2012. 6th March 2012.

6th December 2011.  — Initial meeting.

 

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