Meeting held on Friday 18th October 2019 – 4.00pm, to 6.00pm. held in the Horizon View Room at The Macmillan Horizon Centre, RSCH,Brighton.
Sandra was absent from today’s meeting so it was opened by Steve who welcomed everybody to the meeting.Today we welcomed the following guests:Janet Pickett (The Keep & Marathon runner), Julie Barnard & Jenny King (Chemotherapy department),Julia Lenton (Sussex Cancer Fund) and Lisa Massey(Speech & Language Therapist).
Presentation: A/P 3/19 — Purchased item for Chemo department – We started the meeting by getting Janet Pickett to present the tablet bought from the money she raised in running the Brighton half-marathon in February to Julie Barnard & Jenny King from the chemotherapy department at the Sussex Cancer Centre,Julia Lenton was on hand to take some group photos for the Sussex Cancer Fund website and facebook pages.
Lisa Massey(Speech & Language Therapist): Lisa explained her role within the cancer centre and then went onto describe what patients go through during and after treatment regarding swallowing exercises to be done once a day post treatment,she gave out a leaflet to all for the exercises that we should have been doing since treatment finished,she advised that each exercise should be done once a day each one repeated 5 times.To help us along we went through the exercises with her guidance. She also advised that to help us with any tablets we have to take the take them with yoghurts or custard. Steve to send out copy of exercise sheet to all and to put on website.
2) Secretary (Steve):
Apologies: Steve had received apologies from Sandra,Murray & Jane McNevin who was due to be another guest today.
Outstanding points from last meeting:
AP23/18 – Macmillan Support Group Grants. The final £52 from the grant has been used by Steve to order ink supplies for the group’s printer. – COMPLETED.
25/18 — NHS training for Macmillan volunteers on NHS premises(Buddies)– Steve had heard from Hannah Rudd who had sent him some dates of forthcoming training dates,Steve had past these onto Jim & Sandra(making there own arrangements as cannot make these dates) and John who was available on a couple of the dates,Steve to reply to Hannah with the contact details for John to arrange directly. – ONGOING.
01/19 — Melissa Williams at the Keep has offered to arrange a visit — Sandra to arrange.– ONGOING.
02/19 — Drop-Ins — volunteers needed for meeting dates.–It was agreed to sign this off as people turn up early anyway,but the drop ins will continue in 2020–COMPLETED.
03/19 — Mid Sussex Support group at PRH Hospital – Mark Whitcomb from Macmillan is now involved in setting this up,we have completed the recommendations of the meeting held on 31/07/2019.– ONGOING.
04/19 – 2019 Head & Neck Conference — – ONGOING.
A/P 07/19 – The team had a visit from the Head & Neck director from the BSUH trust to congratulate them on their award from Macmillan. Steve had invited Jane McNevin who was due today but had to cancel she has said that she will come to a future meeting. – ONGOING.
11/19 — Meetings Agenda and make up: This was discussed today and it was agreed that it would be a good idea to have a Specific subject that would be discussed during the meeting,it was also agreed that to split the meeting at half-way for tea/coffee and comfort breaks was a good idea.Steve will work on these ideas with further discussion at the next meeting before implementing probably 1st meeting in 2020.The day,time and location for 2020 meetings was put forward — ONGOING.
12/19 — Meeting Invite: Steve to invite Robin Payne (Macmillan Nurse) to the October meeting.– ONGOING.
13/19 — Purchased item for Chemo department: Steve to invite Jane Pickett and a nurse from the chemo department to the next meeting to present the tablet.Took place today– COMPLETED.
14/19 — Leaflet Update: This has been completed and the new leaflets are now in the Sussex Cancer Centre — COMPLETED.
Website: Steve stated that he had been in contact with Dotsquares,who look after our website as they had raised @£700 for Macmillan at the recent Coffee Morning event and he thanked them for doing that,He also said that our site had had over 54,000 visitors in the 5 years it had been going. How do we donate to Thancs from the website ? — Steve to work out best way.
3) Treasurer (Jacki):
4) Buddies update (John /Jim / Sandra):–
Radiotherapy – Continues to be very busy,numbers are still rising and it was noticeable there are a lot of younger people being affected by head & neck.
Chemotherapy — Also continues to be very busy, numbers rising as well and with standing room only in reception at times.
Volunteers – We still need more buddies,so this will become a focus point in 2020.
5) Clinical update (Hetal & Susan):
No report from the clinicians as nobody attended this time.
Dentists: Reminder — All dentists now have to do a full oral check for signs of cancer during regular.
6th & 7th November 2019– Head & Neck Cancer conference being held in Brighton.– See A/P 04/19 above.
Friday 6th December from 5.30pm onwards Blind Busker,Church Road,Hove.Xmas social evening get together.
15/19 — Thancs details: Steve to details of website and facebook page to Julia Lenton and Janet Pickett.
16/19 — Swallowing Exercises: Steve to send out copy of exercise sheet to all and to put on website.
17/19 — 2020 meeting dates: Steve to write to Horizon Centre to book the meeting dates and room for next years meetings.
18/19 — Donating to Thancs: How do we donate to Thancs from the website ? — Steve to work out best way.
19/19 — Buddies: How do we get more Buddies this will be a focus for us in 2020 — The group to work out best way.
20/19 — Xmas Social evening: Arranged for Friday 7th December from 5.30pm onwards at The Blind Busker,Church Road,Hove, there will be food. Steve to send out details to all and to put on website.
21/19 — Conference Tickets: Steve to send tickets to Linda Murray.
22/19 — Horizon Centre: Celebrating their 3rd birthday on Monday 25th November and they are holding a soiree between 4pm and 5.30pm.If anybody is interested in attending then please email the Horizon Centre so that they can cater for all. Steve to send out details to all and to put on website.
23/19 — Committee Members: The 3 main positions Chairperson, Treasurer and Secretary are up for renewal at the end of the year,unfortunately it looks like we will need a new Chairperson so if anybody is interested in any of the postions then please let the secretary know by email by 31/12/2019. Steve to send out email to all and to put on website.
7) Next meeting: The next meeting is on Friday 13th December 4.00pm, to 6.00pm. at The Horizon Centre. (We already have a guest or 2 lined up).
Attendees were thanked ……. Meeting Closed at 5.45pm.
CHAIRPERSON – Sandra Aughney.
SECRETARY & WEBSITE – Steve Grantham.
TREASURER – Jacki Clarke.
CLINICAL INPUT – Heeta Raval (Radiographer) and Susan Vyoral(Dietician) and Ella Bowen and Robin Payne (Macmillan Cancer Support Workers),Richard Simcock (Consultant) and AJ Ray-Chaudhuri (Restorative Dentist).
COMMITTEE – -Group Members (Patients & Carers).
For copies of last meetings please contact Steve Grantham who will supply a copy of it for you.
16th August 2019. 14th June 2019. 26th April 2019. 15th February 2019.
19th October 2018 16th August 2018. 15th June 2018. 20th April 2018. 16th February 2018.
1st December 2017. 15th September 2017. 30th June 2017. 10th March 2017.
9th December 2016. 21st September 2016. 8th July 2016. 11th March 2016.
8th December 2015. 29th September 2015. 6th June 2015. 17th March 2015.
12th December 2014. 22nd September 2014. 11th June 2014. 14th March 2014.
19th December 2013. 27th September 2013.
There were meetings prior to these dates when no minutes were kept.
11th June 2013. 22nd March 2013.
13th December 2012. 19th September 2012. 9th July 2012. 6th March 2012.
6th December 2011. — Initial meeting.