Meeting held on Friday 26th April 2019 – 4.00pm, to 6.00pm. held in the Horizon View Room at The Macmillan Horizon Centre, RSCH,Brighton.
Sandra welcomed everybody to the meeting.We had a special guest with us today, Janet Pickett from The Keep, who ran the Brighton half-marathon in February and raised for us £790,she gave us an insight into how she come to run it,her training regime and sessions as well as the run itself,she raised the amount through a Just giving page, a sponsor form for cash donations. Sandra and the group thanked her and promised to let her know how we would spend the amount.
2) Secretary (Steve):
Apologies: Steve had received an apology from Elizabeth who unfortunately had had a fall and felt it was too far to travel from Hastings with her injuries.
Outstanding points from last meeting:
AP23/18 – Macmillan Support Group Grants. Following the purchase of the laptop (details in last meeting), we still have £52 from the laptop grant(this will be used for future ink purchases) + £100 for a “social” event to be discussed in AOB – ONGOING.
25/18 — Steve has emailed the person within the NHS about the training for Macmillan volunteers on NHS premises(Buddies). – ONGOING.
01/19 — Melissa Williams at the Keep has offered to arrange a visit — Sandra to arrange.– ONGOING.
02/19 — Drop-Ins — volunteers needed for future meeting dates,Thanks to Brian & Sylvia for sitting in on todays meeting. – ONGOING.
03/19 — Mid Sussex Support group at PRH Hospital – Richard Simcock is looking into it,hopefully some of us can get involved in this.– ONGOING.
04/19 – 2019 Head & Neck Conference — – ONGOING.
Website: Steve to update the “Welcome to Thancs” section on the front page.A/P 05/19
Website: Steve to pay for the renewal of Website when due in May.A/P 06/19
3) Treasurer (Jacki): — Absent so Sandra gave the report.
a) Funds: Our funds currently stand at £1665-14. This only included about half of the monies raised by Janet Pickett.After some discussion we decided that we would look into what equipment was needed by the Radiotherapy or Chemotherapy departments at the SCC with the buddies doing some investigation work,Steve will then email the members of the group so that they can agree/disagree with the item(s) purchased, this would come from the money raised by Janet Pickett.
b) Fundraising: Heather had suggested at the last meeting producing badges and then selling them on — we voted on this idea after a discussion and decided that we would not persue as we couldn’t guarantee meeting the cost of producing them.
c) Cheques: A reminder that any cheques need to be made out to Sussex Cancer Fund but write for Thancs on the back of the cheque.
d) Fair Stalls: After a discussion that we would not have a stall at the Rottingdean Village fair this year mainly due to travel problems getting there for those living in Brighton due to the clash with Pride. However we will look at other similar events in Brighton,Hove,Peacehaven,Seaford.
4) Buddies update (John /Jim / Sandra):
Radiotherapy – continues to be very busy,numbers are still rising and it was noticeable there are a lot of younger people being affected by head & neck.The team had a visit from the Head & Neck director from the BSUH trust to congratulate them on their award from Macmillan.(see below). Steve to find out who this is and invite them to a future meeting. – A/P 07/19.
Chemotherapy — also continues to be very busy, numbers rising as well and with standing room only in reception at times.
Volunteers – We still need more buddies despite Heather Ferguson’s application being dealt with.
Dentists: All dentists now have to do a full oral check for signs of cancer during regular
Macmillan Award: The Macmillan volunteer team of the year won by the Buddies team will be receiving their award at a lavish ceremony at a London hotel in the summer.
5) Clinical update (Hetal & Susan):
No report from the clinicians as nobody attended this time.
a) Events – An update on events diary.
6th & 7th November 2019– Head & Neck Cancer conference being held in Brighton.– See A/P 04/19 above.
Summer Social event: As we have £100 from the grant for a social event we discussed some possible locations that would be easy for all to get to. 1) The Keep followed by either Stanmer House or The Swan at Falmer — it was decided that these would be looked into once The Keep visit has been arranged.
2) The Coach House, Rottingdean — A return visit to this venue was suggested for a friday evening in July using the £100 budget to use for the buffet, a list of foods were suggested by the group,soft bread sandwiches,cakes,quiche,sausage rolls, sausages, crudities,humous,dips,goujons. This was agreed to look into as it was enjoyed last time. Steve to enquire and book – A/P 08/19.
b) USA member — Linda gave an update on Patsy Klivoda a fellow sufferer from the US who she has been in contact for a few years now and has previously spoke to the group about — Linda to send her the groups best wishes.
c) Half marathon — Janet asked permission if she could put the amount she raised on her facebook page with a link to the group’s website as a way of saying thanks.
d) New Action points:.
05/19 — Website: Steve to update the “Welcome to Thancs” section on the front page.
06/19 — Website: Steve to pay for the renewal of Website when due in May.
07/19 — Macmillan Award:Steve to find out who this is and invite them to a future meeting.
08/19 – Summer Social event: Steve to enquire at the Coach House,Rottingdean for availabilty,discuss the budget and food and book if ok.
7) Next meeting: The next meeting is planned for Friday 14th June 4.00pm, to 6.00pm. at The Horizon Centre.
Attendees were thanked ……. Meeting Closed at 5.50pm.
CHAIRPERSON – Sandra Aughney.
SECRETARY & WEBSITE – Steve Grantham.
TREASURER – Jacki Clarke.
CLINICAL INPUT – Heeta Raval (Radiographer) and Susan Vyoral(Dietician) and Ella Bowen (Macmillan Cancer Support Worker).
COMMITTEE – -Group Members (Patients & Carers).
For copies of last meetings please contact Steve Grantham who will supply a copy of it for you.
26th April 2019. 15th February 2019.
19th October 2018 16th August 2018. 15th June 2018. 20th April 2018. 16th February 2018.
1st December 2017. 15th September 2017. 30th June 2017. 10th March 2017.
9th December 2016. 21st September 2016. 8th July 2016. 11th March 2016.
8th December 2015. 29th September 2015. 6th June 2015. 17th March 2015.
12th December 2014. 22nd September 2014. 11th June 2014. 14th March 2014.
19th December 2013. 27th September 2013.
There were meetings prior to these dates when no minutes were kept.
11th June 2013. 22nd March 2013.
13th December 2012. 19th September 2012. 9th July 2012. 6th March 2012.
6th December 2011. — Initial meeting.