Meeting held on Friday 21st February 2020 – 4.00pm, to 6.00pm. held in the Horizon View Room at The Macmillan Horizon Centre, RSCH,Brighton.
Here are the notes I captured at our meeting.Chaired by Jacki Clarke.
Attendees – Jacki, Sandra, Jim, Brian, Sylvia, Mark, Marj, Elizabeth, Judith plus 2 new attendees Hayley and David.
Apologies – Steve, John, Pat
Actions points discussed.
A/P 01/19 Hope to reschedule when Melissa is back
A/P 11/19 Format of meetings was discussed and general consensus was for less formal set up to the meetings. More of a get together over a coffee and biscuits than a meeting – so no formal meeting, agenda or minutes required. If we can get a speaker to come along occasionally that would be great. The new attendees were asked what they would like from the meeting and chat/support over coffee and biscuits was confirmed. No one wanted to take over as chair. Jacki happy to keep an oversite on funds. It was hoped Steve would continue to look after the website and book meetings although it was felt Ella should be booking the meetings – as she is the admin support. We’ll see how this approach goes and review after the August meeting.
A/P 18/19 Donating from website. Ongoing. We need to fund the website but have enough in funds to cover this for a few years.
A/P 19/19 A new buddy will be starting after they have gone through the relevant training and will be covering Fridays in radiotherapy.
A/P 27/19 The group agreed that the undernutrition scales sounded like a good idea and approved them even though this had already been approved without group discussion.
A/P 29/19 Great news that Richard Simcock has given the ok for Thancs notices to be put up. It is assumed that Steve will design and they will be viewed at the April get together.
David – new attendee – was clearly in a bad way – Jacki has his contact details which will be passed to Geoff and Robyn to hopefully get him the support that he needs.
We hope to see another new attendee – Chelsea – at April meeting. She overheard us in reception and approached Sandra for more info but couldn’t stay for this meeting.
The meeting continued with everyone having a chat around fortisip, feeding tubes and other experiences.
For copies of last meetings please contact Steve Grantham who will supply a copy of it for you.
13th December 2019. 18th October 2019. 16th August 2019. 14th June 2019. 26th April 2019. 15th February 2019.
19th October 2018 16th August 2018. 15th June 2018. 20th April 2018. 16th February 2018.
1st December 2017. 15th September 2017. 30th June 2017. 10th March 2017.
9th December 2016. 21st September 2016. 8th July 2016. 11th March 2016.
8th December 2015. 29th September 2015. 6th June 2015. 17th March 2015.
12th December 2014. 22nd September 2014. 11th June 2014. 14th March 2014.
19th December 2013. 27th September 2013.
There were meetings prior to these dates when no minutes were kept.
11th June 2013. 22nd March 2013.
13th December 2012. 19th September 2012. 9th July 2012. 6th March 2012.
6th December 2011. — Initial meeting.